Saturday, January 22, 2011

6 Months Old!

So, amazingly enough, I am posting this on the day she turns 6 months!! I can't believe it has been six months since that very eventful day she was born, at 1:50 AM. She has come so far since then, and is doing wonderful.

  • Rolling over, although the braces with the bar on her feet seem to hinder that.
  • Sitting up with support for balance. She has gained some major trunk strength this month!
  • Pushing up with her arms while on her tummy, and even occasionally brings her knees underneath her.
  • Using her hands to grab things and bring them to her mouth, and chews on her hands all the time.
  • Bearing weight on her legs when we hold her up. She has been doing this a lot more recently, I was worried she couldn't feel enough to know to push back against the floor.

    So far, no problems. She goes for a rapid MRI and neurosurgeon appt in Feb to check the stability of the fluid in her brain.

    Back to cathing every 3-4 hours, ditropan 3x day, and a daily antibiotic. The dose of ditropan is double what she was on before, and she hasn't had any wet diapers since. But plenty of poopy ones! We are doing cloth diapers and wipes with her while at home, and it is pretty easy. Saves us a fortune on diapers & wipes, especially since I already had the cloth diapers from her older sister.

    Going great. She is in the brace with a bar between them full time. She gets three 30 minute breaks a day to check for pressure sores, blisters, etc. I try to let her have some free time on the floor without them, so she can roll and move around unhindered. We go back in the beginning of Feb for a checkup.

    Her MOMS teddy bear :-D

  • Back to Cathing

    On Tuesday Ruth had her follow up renal ultrasound and checkup with the Urologist.

    We had an afternoon appointment, and our wait time was non-existent. Nice!

    The ultrasound was first. Ruth wasn't crazy about having to lay there for it, but the technician turned on a T.V. and that kept her distracted. Her bladder was VERY full again, so at the end they had me cath her to empty it, so they could get images of it empty. I had a little more trouble this time, I guess I'm out of practice. The technician was very sweet, and told me I did well. She gave Ruth a toy at the end.

    We went right over to the clinic to see the Urologist. We met another young couple in the hallway, their infant son also has Spina Bifida. It was nice to chat with someone dealing with the same things. Ruth was busy smiling and talking to everyone that talked to her, so she earned herself another toy from one of the nurses.

    We didn't have to wait again, which was nice. The urologist came in, asked how we were. I said great - the last month since we've seen him was very uneventful. No bladder infections or other excitement. He said, well, the results of her ultrasound were a little worrisome. The right kidney had more fluid in it than it did at her last ultrasound. This is the side she also has reflux. He said this is concerning, and he felt at this point she is in the group of babies that he feels cathing and ditropan may help. I was really disappointed to hear that, but also relieved in a way. I've spent so much time worrying that she needs this, and we aren't doing it, worrying that we are causing damage to her kidneys and bladder by doing nothing. He did reassure us that her kidneys look great right now, no scarring and they are growing like they should. He just wants to keep it that way.

    She goes back in 2 months for another ultrasound and checkup. Pray that the cathing and medications improve the swelling, and her kidneys and bladder stay healthy.

    Ruth with some of her loot from the visit. She is just so cute - it's hard not to give her toys, haha!